Project List
List projects.
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GET /v1/research/project/?format=api&offset=320&ordering=-begin_planned
{ "count": 2260, "next": "https://api-test.medunigraz.at/v1/research/project/?format=api&limit=20&offset=340&ordering=-begin_planned", "previous": "https://api-test.medunigraz.at/v1/research/project/?format=api&limit=20&offset=300&ordering=-begin_planned", "results": [ { "id": 8572, "title": { "de": "Biologische Chelatbildner zur Behandlung von Metallionenüberladung: Eine vergleichende Studie mit traditionellen chemischen Chelatoren", "en": "Biological chelation agents for metal ion overload: A comparative study\r\nwith traditional chemical chelators" }, "short": "Bio-Chem-Chel ", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2026-12-31T01:00:00+01:00", "end_effective": "2026-12-31T01:00:00+01:00", "assignment": "2024-12-19T14:55:05+01:00", "program": 203, "subprogram": null, "organization": 14012, "category": 10, "type": 10, "partner_function": 3, "manager": 124253, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 20 ], "funder_projectcode": "ASEA 11/2024", "ethics_committee": null, "edudract_number": null, "persons": [ "8572-124253-10" ] }, { "id": 8713, "title": { "de": "Galectin-3 gezielte antifungale Prophylaxe bei influenza", "en": "Galectin-3 targeted antifungal prophylaxis in ICU influenza" }, "short": "GALACtiC", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-04-01T02:00:00+02:00", "end_planned": "2027-12-31T01:00:00+01:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2025-03-06T13:35:22+01:00", "program": 112, "subprogram": null, "organization": 29164, "category": 10, "type": 10, "partner_function": 4, "manager": 64754, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PIN1672624", "ethics_committee": null, "edudract_number": null, "persons": [ "8713-64754-10" ] }, { "id": 8299, "title": { "de": "Energetik-Transkriptions Kopplung im hypertensiven Herzen", "en": "Energetics-transcription coupling in hypertensive heart" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2029-12-31T01:00:00+01:00", "end_effective": "2029-12-31T01:00:00+01:00", "assignment": "2024-07-17T18:19:55+02:00", "program": 110, "subprogram": null, "organization": 14083, "category": 10, "type": 10, "partner_function": 4, "manager": 62747, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "STA 194", "ethics_committee": null, "edudract_number": null, "persons": [ "8299-62747-10", "8299-75758-12", "8299-105142-12", "8299-110709-12", "8299-117943-12", "8299-131037-12", "8299-122231-12" ] }, { "id": 8534, "title": { "de": "K Kanal Regler bei IPF\r\n", "en": "K channel regulator in IPF\r\n" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2028-12-31T01:00:00+01:00", "end_effective": "2028-12-31T01:00:00+01:00", "assignment": "2024-11-28T16:37:05+01:00", "program": 72, "subprogram": null, "organization": 14087, "category": 10, "type": 10, "partner_function": 4, "manager": 58984, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PAT7985824", "ethics_committee": null, "edudract_number": null, "persons": [ "8534-58984-10" ] }, { "id": 9076, "title": { "de": "MetAGE: Metabolische Kontrolle von Altern & Krankheit (Zusatzfinanzierung des FWF-geförderten Cluster of Excelence; CoE14)", "en": "MetAGE: Metabolische Kontrolle von Altern & Krankheit (Zusatzfinanzierung des FWF-geförderten Cluster of Excelence; CoE14)" }, "short": "MetAGE", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2026-12-31T01:00:00+01:00", "end_effective": "2026-12-31T01:00:00+01:00", "assignment": "2025-07-07T18:11:47+02:00", "program": null, "subprogram": null, "organization": 14012, "category": 10, "type": 10, "partner_function": 1, "manager": 91207, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 457 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9076-91207-10" ] }, { "id": 9645, "title": { "de": "CONNECT: Evidenzbasierte Gesundheitsinformationen ", "en": "CONNecting Evidence-based health information and CiTizens" }, "short": "CONNECT", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2026-04-01T02:00:00+02:00", "end_planned": "2026-08-30T02:00:00+02:00", "end_effective": "2027-11-30T01:00:00+01:00", "assignment": "2026-03-02T11:03:27+01:00", "program": 120, "subprogram": null, "organization": 27964, "category": 10, "type": 10, "partner_function": 4, "manager": 51098, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "CSP1965525", "ethics_committee": null, "edudract_number": null, "persons": [ "9645-51098-10" ] }, { "id": 8645, "title": { "de": "Bile acids ameliorate obesogenic memory", "en": "Bile acids ameliorate obesogenic memory" }, "short": "BAOB", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2026-12-31T01:00:00+01:00", "end_effective": "2026-12-31T01:00:00+01:00", "assignment": "2025-02-10T15:52:55+01:00", "program": null, "subprogram": null, "organization": 14010, "category": 10, "type": 10, "partner_function": 4, "manager": 98847, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 894 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8645-98847-10" ] }, { "id": 8728, "title": { "de": "Vergleich der konvektive Wasserdampfablation (convective water vapor energy, WAVE™)\r\nmit dem Rezum™-System versus Holmium Laser Enukleation der Prostata (HoLEP) versus\r\nbipolare transurethrale Resektion der Prostata (TUR-P) bei Patienten mit benignen\r\nProstatasyndrom (BPS) – eine randomisierte Studie", "en": "Comparison of Convective Water Vapor Ablation (convective water vapor energy, WAVE™)\r\nwith the Rezum™ System versus Holmium Laser Enucleation of the Prostate (HoLEP) versus\r\nBipolar Transurethral Resection of the Prostate (TUR-P) in Patients with Benign Prostatic\r\nSyndrome (BPS) – A Randomized Study" }, "short": "Vektor", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2030-12-31T01:00:00+01:00", "end_effective": "2030-12-31T01:00:00+01:00", "assignment": "2025-03-17T15:43:09+01:00", "program": null, "subprogram": null, "organization": 14056, "category": 10, "type": 10, "partner_function": 3, "manager": 121670, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": 12, "language": null, "funders": [], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8728-121670-10" ] }, { "id": 9014, "title": { "de": "Elemental and Structural Composition underlying Brain MRI", "en": "Elemental and Structural Composition underlying Brain MRI" }, "short": "WhatsMRI", "url": null, "abstract": { "de": "Magnetic Resonance Imaging (MRI) is widely established, with 50,000 scanners worldwide and more than100 million diagnostic scans conducted yearly. Myelin acts as the electrical insulation of neuronal fibers andis essential for motor, sensory, and cognitive functions and is composed of several lipids and proteins arrangedin a specific geometry. However, myelin loss occurs regionally in inflammatory diseases like multiplesclerosis, myelitis, and optic neuritis, and it also serves as a biomarker of aging.Despite the availability of various MRI-based approaches for detecting myelin, there remains a significant gapin systematically validated knowledge regarding how myelin's lipids, proteins, and structural variationsinfluence MRI signal generation. Furthermore, there is no gold standard for assessing the constituents ofmyelin, and conclusions are primarily based on MRI of formalin-fixed tissue.Quantitative post-mortem MRI of unfixed human brains in situ, combined with subsequent mass spectrometryimaging (LA-ICP-TOF-MS, MALDI-MSI), small-angle X-ray scattering (SAXS), and microscopy (CARS,TEM, IHC), will enable histologically enriched modelling of tissue and the simulation of fundamental MRIparameters (relaxometry, susceptibility, and diffusion) to reveal causal relationships with chemical elements,matrix composition, structure, and common molecules of myelin, neural fiber orientation, and biometals. Inaddition to 20 control brains, 10 brains from deceased individuals with multiple sclerosis will be recruited tobroaden the spectrum of myelination under investigation.This research addresses the fundamental biophysical mechanisms underlying MRI of myelin and chemicalelements, which currently lack validation. We will establish a publicly available elemental and histochemicalatlas of the human brain and identify how histological features causally contribute to quantitative MRIparameters.", "en": "Magnetic Resonance Imaging (MRI) is widely established, with 50,000 scanners worldwide and more than100 million diagnostic scans conducted yearly. Myelin acts as the electrical insulation of neuronal fibers andis essential for motor, sensory, and cognitive functions and is composed of several lipids and proteins arrangedin a specific geometry. However, myelin loss occurs regionally in inflammatory diseases like multiplesclerosis, myelitis, and optic neuritis, and it also serves as a biomarker of aging.Despite the availability of various MRI-based approaches for detecting myelin, there remains a significant gapin systematically validated knowledge regarding how myelin's lipids, proteins, and structural variationsinfluence MRI signal generation. Furthermore, there is no gold standard for assessing the constituents ofmyelin, and conclusions are primarily based on MRI of formalin-fixed tissue.Quantitative post-mortem MRI of unfixed human brains in situ, combined with subsequent mass spectrometryimaging (LA-ICP-TOF-MS, MALDI-MSI), small-angle X-ray scattering (SAXS), and microscopy (CARS,TEM, IHC), will enable histologically enriched modelling of tissue and the simulation of fundamental MRIparameters (relaxometry, susceptibility, and diffusion) to reveal causal relationships with chemical elements,matrix composition, structure, and common molecules of myelin, neural fiber orientation, and biometals. Inaddition to 20 control brains, 10 brains from deceased individuals with multiple sclerosis will be recruited tobroaden the spectrum of myelination under investigation.This research addresses the fundamental biophysical mechanisms underlying MRI of myelin and chemicalelements, which currently lack validation. We will establish a publicly available elemental and histochemicalatlas of the human brain and identify how histological features causally contribute to quantitative MRIparameters." }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-10-01T02:00:00+02:00", "end_planned": "2030-01-01T01:00:00+01:00", "end_effective": "2030-09-30T02:00:00+02:00", "assignment": "2025-06-10T15:39:19+02:00", "program": 208, "subprogram": null, "organization": 14051, "category": 10, "type": 10, "partner_function": 3, "manager": 60116, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 10 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9014-70759-11", "9014-86408-11", "9014-98541-12", "9014-101162-11", "9014-60116-10", "9014-118667-12", "9014-132017-12", "9014-134821-12", "9014-135321-12", "9014-135543-12", "9014-127954-12" ] }, { "id": 9568, "title": { "de": "OBELIX-NEPHROSE: B Zell Depletion in therapie-naiver MCD", "en": "OBELIX-NEPHROSIS: B CELLDEPLETION IN THERAPY-NAÏVE MCD" }, "short": "OBELIX-NEPHROSIS", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2025-08-01T02:00:00+02:00", "end_planned": "2028-12-31T01:00:00+01:00", "end_effective": "2029-07-31T02:00:00+02:00", "assignment": "2026-01-29T13:31:32+01:00", "program": 111, "subprogram": null, "organization": 14084, "category": 10, "type": 10, "partner_function": 2, "manager": 100601, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9568-100601-10" ] }, { "id": 8395, "title": { "de": "Identifying novel lung cancer drivers: Unravelling the functional role of genes affected by large copy number gains\r\n", "en": "Identifying novel lung cancer drivers: Unravelling the functional role of genes affected by large copy number gains\r\n" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-01-01T01:00:00+01:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2026-12-31T01:00:00+01:00", "end_effective": "2026-12-31T01:00:00+01:00", "assignment": "2024-09-23T13:30:15+02:00", "program": null, "subprogram": null, "organization": 14085, "category": 10, "type": 10, "partner_function": 4, "manager": 109002, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 1888 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8395-98327-12", "8395-109501-11", "8395-111070-11", "8395-109002-10", "8395-134203-12" ] }, { "id": 8538, "title": { "de": "Mikrobielle Kontaminationen im Tränkewassersystem – Zusammenhang mit Absetzdurchfällen in der Schweinehaltung ", "en": "Microbial contamination in the drinking water pipe system – correlation with post weaning diarrhea in pig farming" }, "short": "MikroWaSta", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-11-01T01:00:00+01:00", "begin_effective": "2024-12-01T01:00:00+01:00", "end_planned": "2027-04-30T02:00:00+02:00", "end_effective": "2027-04-30T02:00:00+02:00", "assignment": "2024-12-03T15:10:53+01:00", "program": null, "subprogram": null, "organization": 14023, "category": 10, "type": 10, "partner_function": 4, "manager": 58733, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 957 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8538-50497-11", "8538-51198-11", "8538-58733-10", "8538-103077-12" ] }, { "id": 8731, "title": { "de": "Metabolische und epigenetische Regulierung von Th9-Zellen", "en": "Metabolic and epigenetic regulation of Th9 cells" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-11-01T01:00:00+01:00", "begin_effective": "2025-09-01T02:00:00+02:00", "end_planned": "2027-10-31T02:00:00+02:00", "end_effective": "2028-08-31T02:00:00+02:00", "assignment": "2025-03-17T16:30:44+01:00", "program": 72, "subprogram": null, "organization": 14014, "category": 10, "type": 10, "partner_function": 4, "manager": 78952, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PAT9714324", "ethics_committee": null, "edudract_number": null, "persons": [ "8731-78952-10" ] }, { "id": 8503, "title": { "de": "„Mikroperfusion der Haut zur Bestimmung von Veränderungen des Mikromilieus der Haut bei SSc“", "en": "Dermal open flow microperfusion to determine changes in the skin microenvironment in vivo during SSc" }, "short": "SSc_OFM", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-11-01T01:00:00+01:00", "begin_effective": "2024-11-01T01:00:00+01:00", "end_planned": "2025-12-31T01:00:00+01:00", "end_effective": "2026-12-31T01:00:00+01:00", "assignment": "2024-11-19T13:55:23+01:00", "program": null, "subprogram": null, "organization": 14086, "category": 10, "type": 10, "partner_function": 1, "manager": 120271, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 2296 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8503-120271-10" ] }, { "id": 8445, "title": { "de": "Wissenschaftspreis der ÖGKJ", "en": "Research Prize of the \"ÖGKJ\"" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-11-01T01:00:00+01:00", "begin_effective": "2024-11-01T01:00:00+01:00", "end_planned": "2027-10-31T02:00:00+02:00", "end_effective": "2027-10-31T02:00:00+02:00", "assignment": "2024-10-15T14:31:21+02:00", "program": null, "subprogram": null, "organization": 14094, "category": 10, "type": 10, "partner_function": 3, "manager": 50907, "contact": null, "status": 2, "research": 10, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 97 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8445-50907-10" ] }, { "id": 8558, "title": { "de": "Teaching students how children with neurodevelopmental disorders adopt and interact with technologies", "en": "Teaching students how children with neurodevelopmental disorders adopt and interact with technologies" }, "short": "TE(A)CHADOPT", "url": null, "abstract": { "de": "Technologien spielen eine immer größer werdende Rolle im Alltag von Kindern mit Entwicklungsstörungen. So werden sie beispielsweise zu Therapiezwecken und als Kommunikationshilfen eingesetzt. Vielfach ist die Barrierefreiheit von Technologien für Kinder mit Entwicklungsstörungen jedoch nicht ausreichend gegeben. Zugleich wird dieses Thema in der Ausbildung derjenigen Studierenden, die in ihrem Berufsleben später Technologien (mit-)entwickeln und/oder einsetzen werden noch kaum behandelt. Im Rahmen dieses interdisziplinären Kooperationsprojekts von sieben Institutionen aus sechs Ländern sollen Leitlinien zur Evaluation von Technologien hinsichtlich ihrer Barrierefreiheit für Kinder mit Entwicklungsstörungen entwickelt und ein umfangreiches Lehrmaterial erstellt, eingesetzt und verbreitet werden. TE(A)CHADOPT soll dazu beitragen, dass Technologien künftig besser die Wünsche und Bedürfnisse von Kindern mit Entwicklungsstörungen erfüllen.", "en": null }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2024-12-15T01:00:00+01:00", "end_planned": "2027-09-30T02:00:00+02:00", "end_effective": "2027-12-14T01:00:00+01:00", "assignment": "2024-12-12T12:09:30+01:00", "program": 220, "subprogram": null, "organization": 14094, "category": 10, "type": 10, "partner_function": 3, "manager": 77049, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 10 ], "funder_projectcode": "2024-1-AT01-KA220-HED-000248380", "ethics_committee": null, "edudract_number": null, "persons": [ "8558-50573-12", "8558-79651-12", "8558-91531-12", "8558-77049-10" ] }, { "id": 8484, "title": { "de": "Genome of Europe\r\n", "en": "Genome of Europe\r\n" }, "short": "GoE", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2027-04-30T02:00:00+02:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2024-11-08T14:33:55+01:00", "program": 214, "subprogram": null, "organization": 14021, "category": 10, "type": 10, "partner_function": 2, "manager": 50899, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 10, 416 ], "funder_projectcode": "101168231", "ethics_committee": null, "edudract_number": null, "persons": [ "8484-50899-10" ] }, { "id": 8506, "title": { "de": "Medizinische Entscheidungen bei der Multisystematrophie: Entwicklung einer\r\npersonalisierten, bestmöglichen medizinischen Versorgung mit integrierter Telemedizin und\r\nmobiler Palliativversorgung für Personen mit Multisystematrophie- Eine monozentrische,\r\nrandomisierte, offene klinische Studie mit verblindeter Bewertung der motorischen Progression\r\nwährend des Interventionszeitraums", "en": "Medical Decision Making in Multiple System Atrophy: developing personalized best medical care with integrated telemedicine and mobile palliative care for individuals with multiple system atrophy - A monocentric, randomized, open-label clinical study with rater\u0002blinded evaluation of motor progression over the interventional period" }, "short": "MeDeMSA Care", "url": null, "abstract": { "de": "Das Lebensende stellt MSA-Patienten, ihre Betreuer und behandelnden Ärzte vor zahlreiche ethische Dilemmata: Vorenthaltung oder Entzug von Medikamenten, Nahrungsverweigerung vs. Gastrostomie, invasive Beatmung, Anordnung der Nicht-Wiederbelebung. \r\nAdvanced Care Planning (ACP) ist ein wichtiger fortlaufender Kommunikationsprozess, bei dem Patienten das klinische Team über ihre Werte, Ziele und Präferenzen bei der medizinischen Behandlung während schwerer und chronischer Krankheiten informieren können. ACP ist ein Instrument zur Förderung der Autonomie von Patienten und ihres individuellen Konzepts von Lebensqualität (QoL), aber die ethische Perspektive wurde in der besonderen Situation von Menschen, die mit MSA leben, noch nicht systematisch in den Blick genommen.\r\nDie wichtigsten Forschungsfragen in diesem Projekt sind: Welche Wünsche und Vorstellungen haben Menschen mit MSA von einem würdigen Lebensende? Wie ist es möglich, die Lebensqualität dieser Menschen und ihrer Betreuer zu verbessern?\r\nUm diese Fragen zu beantworten, werden Menschen mit MSA und ihre Betreuer, die für die Interventionsstudie MeDeMSA PA3 rekrutiert wurden, zu halbstrukturierten Interviews zu Beginn der Studie und 12 Monate nach den Interventionsmaßnahmen eingeladen (Kallio, Pietilä, Johnson, & Kangasniemi, 2016). \r\nZiel ist es, die Präferenzen der Patienten und des Pflegepersonals in Bezug auf die Beteiligung an Entscheidungen in der Gesundheitsversorgung zu bewerten, welche Art der Informationsvermittlung für ihren Entscheidungsprozess relevant ist, wie sie Telemedizin und mobile Palliativversorgung wahrnehmen, deren rechtliche und regulatorische Aspekte und schließlich ihre Sicht auf die Arzt-Patienten-Beziehung und ihr Konzept der Lebensqualität, das für die ACP wesentlich ist.\r\nUm diese Ziele zu erreichen, sind folgende Arbeitsschritte geplant: i. Eine systematische Übersicht über den ethischen und Stand der Technik in Bezug auf die gemeinsame Entscheidungsfindung, ethische Richtlinien, ACP, Gesetze und Vorschriften in Bezug auf Lebensende und Palliativversorgung bei neurodegenerativen Erkrankungen; ii. eine Umfrage zum Autonomie-Präferenz-Index bei Menschen mit MSA, die in PA3 rekrutiert wurden, und deren Betreuer; iii. ein dynamischer Beitrag zu den klinischen MeDeMSA Sitzungen des klinischen MeDeMSA-Ausschusses; iv. eine eingehende Beschäftigung mit der Telemedizin für Menschen mit MSA und die Bewertung ihrer und ethischen Aspekte und die Entwicklung eines bioethischen Rahmens und von Aufklärungsmaterial für MSA-Patienten und ihre Betreuer. In ständiger enger Zusammenarbeit mit den anderen PA der MeDeMSA RG ist es das Ziel einen bioethischen Rahmen für patientenzentrierte medizinische Entscheidungen im MeDeMSA-Versorgungskreis zu schaffen.", "en": "End of life challenges MSA patients, their caregivers and treating physicians with many ethical dilemmas: withholding or withdrawing medications, food refusal vs. gastrostomy feeding, invasive ventilation, the do\u0002not-resuscitate order. \r\nAdvanced care planning (ACP) is an important ongoing process of communication, where patients can inform the clinical team about their values, goals and preferences in medical treatment during serious and chronic illness. ACP is an instrument to promote autonomy of patients and their individual concept of quality of life (QoL), but the ethical perspective has not been systematically focused on in the peculiar setting of people living with MSA yet.\r\nThe main research questions in this PA are: what are the wishes and perceptions of a decent end-of-life for people living with MSA? How is it possible to improve the QoL of these people and their caregivers?To answer these questions, people with MSA and their care-givers recruited in the interventional trial of MeDeMSA PA3 will be invited to join semi-structured interviews at the study begin and 12 months into the interventional procedures (Kallio, Pietilä, Johnson, & Kangasniemi, 2016). \r\nThe aim is to evaluate the patients’ and caregivers’ preferences for involvement in health-care decisions, which kind of information communication is \r\nrelevant for their decision-making process, which is their perception of telemedicine and mobile palliative care, the legal and regulatory aspects thereof and, ultimately, their perspectives on the patient–physician relationship and their concept of QoL, which is essential for ACP.\r\nTo achieve these goals the following worksteps are planned: i. A systematic review of the ethical and regulatory state of the art on shared-decision making, ethical guidelines, ACP, laws and regulations related to end-of life and palliation in neurodegenerative disorders; ii. an Autonomy Preference Index survey of people with MSA recruited in PA3 and their care-givers; iii. a dynamic contribution to the clinical MeDeMSA board meetings; iv. an in-depth focus on telemedicine for people with MSA and the assessment of its regulatory and ethical aspects and v. the development of a bioethical framework and educational material for MSA patients and their caregivers. In permanent close cooperation with the other PA of the MeDeMSA RG, the aim of PA5 is to establish a bioethical framework for patient-centered medical decisions in the MeDeMSA circle of care." }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2028-03-31T02:00:00+02:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2024-11-19T16:44:54+01:00", "program": 113, "subprogram": null, "organization": 14051, "category": 10, "type": 10, "partner_function": 4, "manager": 50172, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "FG 2705 - B ", "ethics_committee": null, "edudract_number": null, "persons": [ "8506-50172-10" ] }, { "id": 8370, "title": { "de": "pan-European Management of Biological toxin incidents through standaRdisAtion initiatives for Crisis response Enhancement (EMBRACE)", "en": "pan-European Management of Biological toxin incidents through standaRdisAtion initiatives for Crisis response Enhancement (EMBRACE)" }, "short": "EMBRACE", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2027-09-30T02:00:00+02:00", "end_effective": "2027-09-30T02:00:00+02:00", "assignment": "2024-08-22T12:04:16+02:00", "program": 211, "subprogram": null, "organization": 29444, "category": 10, "type": 10, "partner_function": 2, "manager": 50654, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 10 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8370-50654-10" ] }, { "id": 8622, "title": { "de": "GREENS ", "en": "GREENS Responsible microrobots" }, "short": "GREENS", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2025-02-01T01:00:00+01:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2029-01-31T01:00:00+01:00", "assignment": "2025-01-24T11:20:32+01:00", "program": 209, "subprogram": null, "organization": 14012, "category": 10, "type": 10, "partner_function": 2, "manager": 107189, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 10 ], "funder_projectcode": "101169173 — GREENS", "ethics_committee": null, "edudract_number": null, "persons": [ "8622-107189-10" ] } ] }