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GET /v1/research/project/?format=api&offset=220&ordering=-end_planned
{ "count": 2244, "next": "https://api-test.medunigraz.at/v1/research/project/?format=api&limit=20&offset=240&ordering=-end_planned", "previous": "https://api-test.medunigraz.at/v1/research/project/?format=api&limit=20&offset=200&ordering=-end_planned", "results": [ { "id": 9044, "title": { "de": "OSIP: Die Erneuerung der Werkzeuge für den Planetenschutz", "en": "OSIP: Modernizing planetary protection toolkits" }, "short": null, "url": null, "abstract": { "de": "Artikel IX des Weltraumvertrags (OST) (https://www.unoosa.org/oosa/en/ourwork/spacelaw/treaties/outerspacetreaty.html) verlangt, dass die Vertragsstaaten geeignete Maßnahmen ergreifen, um eine schädliche Verunreinigung von Himmelskörpern und nachteilige Veränderungen auf der Erde zu vermeiden. Die ESA handelt im Namen ihrer Mitgliedstaaten, die alle Vertragsparteien des Weltraumvertrags sind. Als solche müssen die Aktivitäten der ESA mit den Verpflichtungen der Mitgliedstaaten gemäß Artikel IX übereinstimmen. Die derzeitigen PP-Standards, die auf den Methoden der Viking-Mission der NASA aus den 1970er Jahren beruhen, sind veraltet. Unser Verständnis von mikrobiellem Leben hat sich weiterentwickelt, und so muss auch unser Ansatz für PP. Wir schlagen ein revolutionäres Projekt im Einklang mit der PP-Vision der ESA für 2026 vor (ESA-TECQI-TN-2024-000152). Unser Ziel ist es, den Standardtest (ECSS-Q-ST-70-55) mit einem hochmodernen probabilistischen Risikobewertungsmodell zu erweitern. Jüngste Forschungsarbeiten (Green et al., 2023) haben mehrere Wissenslücken aufgedeckt, wie z. B. die Überlebensfähigkeit von PP-relevanten Mikroorganismen, die wir nun systematisch angehen wollen. Zu diesem Zweck werden wir modernste Metagenomik als Schlüsseltechnologie zur Bewertung der Biodiversität und des Risikos von Vorwärts- und Rückwärtskontaminationen einsetzen. Durch die Integration von Echtzeit-Sequenzierungstechnologien wie Nanopore können wir zeitnah (<24h) ein Profil von Umgebungen mit geringer Biomasse erstellen und den Ingenieuren ermöglichen, Maßnahmen zu ergreifen. Um die Anpassung von Mikroben an Reinraum- und Raumfahrzeugumgebungen wirklich zu verstehen, werden wir Metabolitenvorhersagen auf Genomebene und Massenspektrometrie von Proteinen und Metaboliten durchführen. Wir planen die Entwicklung eines überwachten maschinellen Lernmodells, das metagenomische und massenspektrometrische Daten nutzt, um einen risikoinformierten Wert für die Überlebensfähigkeit von Mikroben in Reinräumen und auf Oberflächen von Raumfahrzeugen zu ermitteln. Unser innovativer Ansatz wird die PP-Toolkits modernisieren, den ESA-Missionsteams mehr Flexibilität und Effizienz bei der Implementierung von PP in Industrieunternehmen bieten und gleichzeitig die Unternehmensverpflichtungen der ESA zur Durchführung verantwortungsvoller und nachhaltiger Weltraumerkundungen erfüllen. Begleiten Sie uns auf diesem kühnen Weg, PP neu zu definieren und eine sichere und nachhaltige Zukunft in der Weltraumforschung zu gewährleisten.", "en": "Article IX of the Outer Space Treaty (OST) (https://www.unoosa.org/oosa/en/ourwork/spacelaw/treaties/outerspacetreaty.html) requires that State parties adopt appropriate measures to avoid harmful contamination of celestial bodies and adverse changes on Earth. ESA acts on behalf of its Member States, all of which are State parties to the OST. As such, ESA's activities shall comply with Member States' obligations to Article IX. The current PP standards, rooted in methodologies from the 1970s NASA Viking mission, are outdated. Our understanding of microbial life has evolved, and so must our approach to PP. We propose a revolutionary project in line with ESA’s PP vision for 2026 (ESA-TECQI-TN-2024-000152). Our goal is to enhance the standard assay (ECSS-Q-ST-70-55) with a cutting-edge probabilistic risk assessment model. Recent research (Green et al., 2023) has unveiled several knowledge gaps, such as the survivability of PP-relevant microorganisms, which we aim to address now systematically. For this, we will leverage state-of-the-art metagenomics as a key technology to assess biodiversity and the risk of forward and backward contaminations. By integrating real-time sequencing technologies like Nanopore, we can profile low biomass environments in a timely manner (<24h) and allow engineers to take action. To truly understand the adaptation of microbes to cleanroom and spacecraft environments, we will implement genome-scale metabolite predictions and mass spectrometry of proteins and metabolites. We plan to develop a supervised machine learning model that uses metagenomic and mass spectrometry data to provide a risk-informed value for the survivability of microbes from cleanrooms and spacecraft surfaces. Our innovative approach will modernize PP toolkits, provide more flexibility and increased efficiency to ESA mission teams when implementing PP inside industrial organizations while fulfilling ESA’s corporate obligations to conduct responsible and sustainable space explorations. Join us in this bold journey to redefine PP and ensure a safe and sustainable future in space exploration." }, "begin_planned": "2025-10-01T02:00:00+02:00", "begin_effective": "2025-10-01T02:00:00+02:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2028-09-30T02:00:00+02:00", "assignment": "2025-06-20T11:55:25+02:00", "program": null, "subprogram": null, "organization": 14023, "category": 10, "type": 10, "partner_function": 3, "manager": 100035, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 1203 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9044-90021-12", "9044-100035-10", "9044-113714-12" ] }, { "id": 8535, "title": { "de": "Metabolische Kontrolle von Altern und Krankheit", "en": "Metabolic control of aging and disease" }, "short": "MetAGE", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2023-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2029-09-30T02:00:00+02:00", "assignment": "2024-11-29T14:49:59+01:00", "program": 125, "subprogram": null, "organization": 14083, "category": 10, "type": 10, "partner_function": 2, "manager": 94512, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "COE14", "ethics_committee": null, "edudract_number": null, "persons": [ "8535-94512-10", "8535-129380-12" ] }, { "id": 8525, "title": { "de": "Metabolische Kontrolle von Altern und Krankheit", "en": "Metabolic control of aging and disease" }, "short": "MetAGE", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2023-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2029-09-30T02:00:00+02:00", "assignment": "2024-11-21T16:12:41+01:00", "program": 125, "subprogram": null, "organization": 14013, "category": 10, "type": 10, "partner_function": 4, "manager": 51860, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "COE14", "ethics_committee": null, "edudract_number": null, "persons": [ "8525-70922-12", "8525-51860-10", "8525-120872-12", "8525-131699-12", "8525-124053-12", "8525-126655-12" ] }, { "id": 9223, "title": { "de": "Diethylsuccinat als neues Therapeutikum bei IPF", "en": "Diethylsuccinate as a novel therapeutic for IPF" }, "short": "Diethylsuccinat_therapeutic_IPF", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-10-01T02:00:00+02:00", "begin_effective": "2025-11-01T01:00:00+01:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2029-10-31T01:00:00+01:00", "assignment": "2025-09-24T11:54:15+02:00", "program": 72, "subprogram": null, "organization": 14022, "category": 10, "type": 10, "partner_function": 4, "manager": 85658, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PAT2165825", "ethics_committee": null, "edudract_number": null, "persons": [ "9223-85658-10", "9223-50132-12", "9223-111587-12", "9223-116746-12", "9223-126994-12" ] }, { "id": 9268, "title": { "de": "Cross Regions 4 Health", "en": "Cross Regions 4 Health" }, "short": "CrossReg-4-Health", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-10-01T02:00:00+02:00", "begin_effective": "2025-11-01T01:00:00+01:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2028-10-30T01:00:00+01:00", "assignment": "2025-10-13T12:38:35+02:00", "program": null, "subprogram": null, "organization": 14051, "category": 10, "type": 10, "partner_function": 1, "manager": 82411, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 10 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9268-82411-10" ] }, { "id": 8526, "title": { "de": "Metabolische Kontrolle von Altern und Krankheit", "en": "Metabolic control of aging and disease" }, "short": "MetAGE", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2023-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2028-09-30T02:00:00+02:00", "end_effective": "2029-09-30T02:00:00+02:00", "assignment": "2024-11-21T16:12:55+01:00", "program": 125, "subprogram": null, "organization": 14022, "category": 10, "type": 10, "partner_function": 4, "manager": 71487, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "COE14", "ethics_committee": null, "edudract_number": null, "persons": [ "8526-71487-10", "8526-116490-12", "8526-119268-12", "8526-125934-12", "8526-127474-12" ] }, { "id": 9083, "title": { "de": "Metabolische Signaturen und Reaktionsvorhersage unter Nährstoffentzug bei Brustkrebs", "en": "Metabolic Signatures and Response Prediction under Nutrient Deprivation in Breast Cancer" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-09-01T02:00:00+02:00", "begin_effective": "2025-09-01T02:00:00+02:00", "end_planned": "2028-08-31T02:00:00+02:00", "end_effective": "2028-08-31T02:00:00+02:00", "assignment": "2025-07-09T16:52:51+02:00", "program": 116, "subprogram": null, "organization": 14017, "category": 10, "type": 10, "partner_function": 4, "manager": 107135, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 15 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9083-107135-10" ] }, { "id": 9082, "title": { "de": "Der Einfluss von humanen p53 Varianten auf Gewichtsschwankungs-assoziierte Metaflammation", "en": "Impact of human p53 variants on metaflammation during weight cycling" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-09-01T02:00:00+02:00", "begin_effective": "2025-09-01T02:00:00+02:00", "end_planned": "2028-08-31T02:00:00+02:00", "end_effective": "2028-08-31T02:00:00+02:00", "assignment": "2025-07-09T15:54:23+02:00", "program": 116, "subprogram": null, "organization": 14017, "category": 10, "type": 10, "partner_function": 4, "manager": 124455, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 15 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9082-124455-10" ] }, { "id": 9128, "title": { "de": "Erweiterte Realität für offenes anatomisches und medizinisches Erbe\r\nErkundung, Innovation und kulturelle Zugänglichkeit", "en": "eXtended Reality for Open Anatomical and Medical Heritage\r\nExploration, Innovation, and Cultural Accessibility" }, "short": "XR-Anatomica", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-09-01T02:00:00+02:00", "begin_effective": "2025-09-01T02:00:00+02:00", "end_planned": "2028-08-31T02:00:00+02:00", "end_effective": "2028-08-31T02:00:00+02:00", "assignment": "2025-08-04T17:22:16+02:00", "program": null, "subprogram": "Virtuelle und hybride Welten 2024", "organization": 14018, "category": 10, "type": 10, "partner_function": 2, "manager": 97024, "contact": null, "status": 2, "research": 10, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 416 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9128-97024-10", "9128-102804-12" ] }, { "id": 9075, "title": { "de": "Search for combinational therapy to target clonal haematopoiesis in solid malignancies", "en": "Search for combinational therapy to target clonal haematopoiesis in solid malignancies" }, "short": "SARAH", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-09-01T02:00:00+02:00", "begin_effective": "2025-10-01T02:00:00+02:00", "end_planned": "2028-08-31T02:00:00+02:00", "end_effective": "2028-09-30T02:00:00+02:00", "assignment": "2025-07-07T14:22:56+02:00", "program": 111, "subprogram": null, "organization": 14085, "category": 10, "type": 10, "partner_function": 1, "manager": 109002, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PIK4391224", "ethics_committee": null, "edudract_number": null, "persons": [ "9075-109002-10", "9075-119310-12", "9075-124172-12" ] }, { "id": 9498, "title": { "de": "Dauer der Surfactant-Applikation und Einfluss auf die Stabilisierung der Vitalparameter bei sehr unreifen Frühgeborenen: 1 Minute versus 5 Minuten – eine prospektive, randomisiert-kontrollierte Phase-IV-Studie.", "en": "Duration of Surfactant administration and impact on Stabilisation of vital parameters in very preterm neonates: 1 minute versus 5 minutes – a prospective randomised-controlled phase IV trial." }, "short": "SurfStab I Trial", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2026-01-08T01:00:00+01:00", "begin_effective": "2026-01-08T01:00:00+01:00", "end_planned": "2028-08-08T02:00:00+02:00", "end_effective": "2028-08-07T02:00:00+02:00", "assignment": "2025-12-17T12:10:35+01:00", "program": null, "subprogram": null, "organization": 14094, "category": 10, "type": 10, "partner_function": 1, "manager": 82050, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 3942 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "9498-82050-10" ] }, { "id": 9500, "title": { "de": "Archaeom-Immunsysteminteraktionen", "en": "Archaeome- immune system interactions" }, "short": "ARISI", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-06-01T02:00:00+02:00", "begin_effective": "2026-04-01T02:00:00+02:00", "end_planned": "2028-05-31T02:00:00+02:00", "end_effective": "2029-03-31T02:00:00+02:00", "assignment": "2025-12-17T13:33:48+01:00", "program": 111, "subprogram": null, "organization": 14023, "category": 10, "type": 10, "partner_function": 2, "manager": 90021, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PIN3716924 ", "ethics_committee": null, "edudract_number": null, "persons": [ "9500-90021-10" ] }, { "id": 8467, "title": { "de": "Cathepsin-C-Hemmung bei pulmonaler Hypertonie", "en": "Cathepsin C Inhibition in Pulmonary Hypertension" }, "short": "CatC", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-06-01T02:00:00+02:00", "begin_effective": "2025-04-01T02:00:00+02:00", "end_planned": "2028-05-31T02:00:00+02:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2024-11-04T10:49:08+01:00", "program": 72, "subprogram": null, "organization": 14006, "category": 10, "type": 10, "partner_function": 4, "manager": 82090, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PAT5277424", "ethics_committee": null, "edudract_number": null, "persons": [ "8467-86731-12", "8467-108716-12", "8467-82090-10" ] }, { "id": 8809, "title": { "de": "Hybride KI-Modelle für die Erkennung und Überprüfung von Behauptungen", "en": "Hybrid AI Models for Claim Detection and Verification" }, "short": "CLAIM - AI Ökosysteme 2024", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-05-01T02:00:00+02:00", "begin_effective": "2025-05-01T02:00:00+02:00", "end_planned": "2028-05-31T02:00:00+02:00", "end_effective": "2028-04-30T02:00:00+02:00", "assignment": "2025-04-28T12:20:20+02:00", "program": 126, "subprogram": null, "organization": 29444, "category": 10, "type": 10, "partner_function": 2, "manager": 50654, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 416 ], "funder_projectcode": "FO999923561", "ethics_committee": null, "edudract_number": null, "persons": [ "8809-50654-10" ] }, { "id": 8537, "title": { "de": "AlveOlism: Wie Fettstoffwechsel Lungenregeneration fördert", "en": "AlveOlism: How Lipid CatabOlism fuels AlveOlar Regeneration" }, "short": "AlveOlism", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-04-01T02:00:00+02:00", "begin_effective": "2025-01-01T01:00:00+01:00", "end_planned": "2028-03-31T02:00:00+02:00", "end_effective": "2028-12-31T01:00:00+01:00", "assignment": "2024-12-03T09:54:10+01:00", "program": 72, "subprogram": null, "organization": 14006, "category": 10, "type": 10, "partner_function": 4, "manager": 57409, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PAT9976323", "ethics_committee": null, "edudract_number": null, "persons": [ "8537-57409-10", "8537-112150-12" ] }, { "id": 8506, "title": { "de": "Medizinische Entscheidungen bei der Multisystematrophie: Entwicklung einer\r\npersonalisierten, bestmöglichen medizinischen Versorgung mit integrierter Telemedizin und\r\nmobiler Palliativversorgung für Personen mit Multisystematrophie- Eine monozentrische,\r\nrandomisierte, offene klinische Studie mit verblindeter Bewertung der motorischen Progression\r\nwährend des Interventionszeitraums", "en": "Medical Decision Making in Multiple System Atrophy: developing personalized best medical care with integrated telemedicine and mobile palliative care for individuals with multiple system atrophy - A monocentric, randomized, open-label clinical study with rater\u0002blinded evaluation of motor progression over the interventional period" }, "short": "MeDeMSA Care", "url": null, "abstract": { "de": "Das Lebensende stellt MSA-Patienten, ihre Betreuer und behandelnden Ärzte vor zahlreiche ethische Dilemmata: Vorenthaltung oder Entzug von Medikamenten, Nahrungsverweigerung vs. Gastrostomie, invasive Beatmung, Anordnung der Nicht-Wiederbelebung. \r\nAdvanced Care Planning (ACP) ist ein wichtiger fortlaufender Kommunikationsprozess, bei dem Patienten das klinische Team über ihre Werte, Ziele und Präferenzen bei der medizinischen Behandlung während schwerer und chronischer Krankheiten informieren können. ACP ist ein Instrument zur Förderung der Autonomie von Patienten und ihres individuellen Konzepts von Lebensqualität (QoL), aber die ethische Perspektive wurde in der besonderen Situation von Menschen, die mit MSA leben, noch nicht systematisch in den Blick genommen.\r\nDie wichtigsten Forschungsfragen in diesem Projekt sind: Welche Wünsche und Vorstellungen haben Menschen mit MSA von einem würdigen Lebensende? Wie ist es möglich, die Lebensqualität dieser Menschen und ihrer Betreuer zu verbessern?\r\nUm diese Fragen zu beantworten, werden Menschen mit MSA und ihre Betreuer, die für die Interventionsstudie MeDeMSA PA3 rekrutiert wurden, zu halbstrukturierten Interviews zu Beginn der Studie und 12 Monate nach den Interventionsmaßnahmen eingeladen (Kallio, Pietilä, Johnson, & Kangasniemi, 2016). \r\nZiel ist es, die Präferenzen der Patienten und des Pflegepersonals in Bezug auf die Beteiligung an Entscheidungen in der Gesundheitsversorgung zu bewerten, welche Art der Informationsvermittlung für ihren Entscheidungsprozess relevant ist, wie sie Telemedizin und mobile Palliativversorgung wahrnehmen, deren rechtliche und regulatorische Aspekte und schließlich ihre Sicht auf die Arzt-Patienten-Beziehung und ihr Konzept der Lebensqualität, das für die ACP wesentlich ist.\r\nUm diese Ziele zu erreichen, sind folgende Arbeitsschritte geplant: i. Eine systematische Übersicht über den ethischen und Stand der Technik in Bezug auf die gemeinsame Entscheidungsfindung, ethische Richtlinien, ACP, Gesetze und Vorschriften in Bezug auf Lebensende und Palliativversorgung bei neurodegenerativen Erkrankungen; ii. eine Umfrage zum Autonomie-Präferenz-Index bei Menschen mit MSA, die in PA3 rekrutiert wurden, und deren Betreuer; iii. ein dynamischer Beitrag zu den klinischen MeDeMSA Sitzungen des klinischen MeDeMSA-Ausschusses; iv. eine eingehende Beschäftigung mit der Telemedizin für Menschen mit MSA und die Bewertung ihrer und ethischen Aspekte und die Entwicklung eines bioethischen Rahmens und von Aufklärungsmaterial für MSA-Patienten und ihre Betreuer. In ständiger enger Zusammenarbeit mit den anderen PA der MeDeMSA RG ist es das Ziel einen bioethischen Rahmen für patientenzentrierte medizinische Entscheidungen im MeDeMSA-Versorgungskreis zu schaffen.", "en": "End of life challenges MSA patients, their caregivers and treating physicians with many ethical dilemmas: withholding or withdrawing medications, food refusal vs. gastrostomy feeding, invasive ventilation, the do\u0002not-resuscitate order. \r\nAdvanced care planning (ACP) is an important ongoing process of communication, where patients can inform the clinical team about their values, goals and preferences in medical treatment during serious and chronic illness. ACP is an instrument to promote autonomy of patients and their individual concept of quality of life (QoL), but the ethical perspective has not been systematically focused on in the peculiar setting of people living with MSA yet.\r\nThe main research questions in this PA are: what are the wishes and perceptions of a decent end-of-life for people living with MSA? How is it possible to improve the QoL of these people and their caregivers?To answer these questions, people with MSA and their care-givers recruited in the interventional trial of MeDeMSA PA3 will be invited to join semi-structured interviews at the study begin and 12 months into the interventional procedures (Kallio, Pietilä, Johnson, & Kangasniemi, 2016). \r\nThe aim is to evaluate the patients’ and caregivers’ preferences for involvement in health-care decisions, which kind of information communication is \r\nrelevant for their decision-making process, which is their perception of telemedicine and mobile palliative care, the legal and regulatory aspects thereof and, ultimately, their perspectives on the patient–physician relationship and their concept of QoL, which is essential for ACP.\r\nTo achieve these goals the following worksteps are planned: i. A systematic review of the ethical and regulatory state of the art on shared-decision making, ethical guidelines, ACP, laws and regulations related to end-of life and palliation in neurodegenerative disorders; ii. an Autonomy Preference Index survey of people with MSA recruited in PA3 and their care-givers; iii. a dynamic contribution to the clinical MeDeMSA board meetings; iv. an in-depth focus on telemedicine for people with MSA and the assessment of its regulatory and ethical aspects and v. the development of a bioethical framework and educational material for MSA patients and their caregivers. In permanent close cooperation with the other PA of the MeDeMSA RG, the aim of PA5 is to establish a bioethical framework for patient-centered medical decisions in the MeDeMSA circle of care." }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2028-03-31T02:00:00+02:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2024-11-19T16:44:54+01:00", "program": 113, "subprogram": null, "organization": 14051, "category": 10, "type": 10, "partner_function": 4, "manager": 50172, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "FG 2705 - B ", "ethics_committee": null, "edudract_number": null, "persons": [ "8506-50172-10" ] }, { "id": 8784, "title": { "de": "Diagnostische Herausforderungen bei der klinischen Alzheimer-Erkennung: Einsatz von blutbasiertem Phospho-Tau 217 zur Verbesserung der diagnostischen Genauigkeit in österreichischen Gedächtnisambulanzen", "en": "Addressing Challenges in Clinical Alzheimer’s Diagnosis: Blood-Based Phospho-Tau 217 to Improve Diagnostic Accuracy in Austrian Memory Clinics" }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2025-05-01T02:00:00+02:00", "begin_effective": "2025-05-01T02:00:00+02:00", "end_planned": "2028-03-31T02:00:00+02:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2025-04-15T18:49:25+02:00", "program": null, "subprogram": null, "organization": 14051, "category": 10, "type": 10, "partner_function": 4, "manager": 73547, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 2269 ], "funder_projectcode": null, "ethics_committee": null, "edudract_number": null, "persons": [ "8784-73547-10" ] }, { "id": 8356, "title": { "de": "CXCR4 role in the anabolic response of teriparatide in bone ", "en": "CXCR4 role in the anabolic response of teriparatide in bone " }, "short": null, "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-10-01T02:00:00+02:00", "begin_effective": "2024-10-01T02:00:00+02:00", "end_planned": "2028-03-31T02:00:00+02:00", "end_effective": "2028-03-31T02:00:00+02:00", "assignment": "2024-08-19T14:37:04+02:00", "program": 72, "subprogram": null, "organization": 14028, "category": 10, "type": 10, "partner_function": 4, "manager": 107134, "contact": null, "status": 2, "research": 1, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 9 ], "funder_projectcode": "PAT4629323", "ethics_committee": null, "edudract_number": null, "persons": [ "8356-50464-12", "8356-56571-12", "8356-107134-10", "8356-110967-12", "8356-129458-12", "8356-122433-12", "8356-124131-12" ] }, { "id": 8066, "title": { "de": "Digitalisierung von innovativen Pflegeprozessen\r\nzur Entlastung und Befähigung von Pflegenden\r\n", "en": "Digitalisation of Innovative Care Processes\r\nto Unburden and Empower Nurses" }, "short": "N!CA", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2024-03-01T01:00:00+01:00", "begin_effective": "2024-03-01T01:00:00+01:00", "end_planned": "2028-02-29T01:00:00+01:00", "end_effective": "2028-02-29T01:00:00+01:00", "assignment": "2024-03-04T14:49:46+01:00", "program": 94, "subprogram": null, "organization": 14509, "category": 10, "type": 10, "partner_function": 2, "manager": 63683, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 416 ], "funder_projectcode": "FO999904895", "ethics_committee": null, "edudract_number": null, "persons": [ "8066-63683-10" ] }, { "id": 9148, "title": { "de": "Biosynthetisiertes Porphyrin-beladenes Hydrogel für die photodynamische Therapie von multiresistenter Candida albicans bei HIV-infizierten Patienten", "en": "Biosynthesised porphyrin loaded hydrogel for photodynamic\r\ntherapy of multidurg-resistant Candida albicans in HIV infected\r\npatients" }, "short": "BioPor-PDT", "url": null, "abstract": { "de": null, "en": null }, "begin_planned": "2026-03-01T01:00:00+01:00", "begin_effective": "2025-12-01T01:00:00+01:00", "end_planned": "2028-02-28T01:00:00+01:00", "end_effective": "2027-11-30T01:00:00+01:00", "assignment": "2025-08-14T16:24:27+02:00", "program": 254, "subprogram": null, "organization": 14012, "category": 10, "type": 10, "partner_function": 1, "manager": 124253, "contact": null, "status": 2, "research": 2, "grant": 10, "event": null, "study": null, "language": null, "funders": [ 20 ], "funder_projectcode": "P161", "ethics_committee": null, "edudract_number": null, "persons": [ "9148-124253-10" ] } ] }